2026-04-17T14:01:42Zhttps://riubu.ubu.es/oai/request

oai:riubu.ubu.es:10259/88332024-03-16T01:05:13Zcom_10259_6256com_10259_5086com_10259_2604com_10259_7328com_10259_3989com_10259.4_106com_10259_4219col_10259_6257col_10259_7329col_10259_4220

Simón Vicente, Lucía 635 600 0000-0003-4450-7316 Cuesta García, César b8e33fe8-f20b-47f8-b654-075533137a19 600 Rivadeneyra Posadas, Jéssica Jannett 8b6474c8-2c4f-445f-95e6-70a0b79f5a5f 600 Mariscal, Natividad e5bc8958-976e-4cb3-9241-2036a63603ed 600 Aguado, Laura e07b48f3-0137-4942-a4c7-dd0fdbc79d1f 600 Miguel-Pérez, Irene d6aa23d4-2584-4460-8fe4-3f96443351e3 600 Saiz Rodríguez, Miriam 826 600 0000-0002-1660-3135 García Bustillo, Álvaro d452db32-0bde-4d5e-8235-22d8928ca130 600 Muñoz-Siscart, Ignacio 0222c8db-041c-41f1-99b3-69abfb0440d9 600 Piñeiro, Dolores 42605eba-3508-4a0d-b143-7ddd6f5fd56c 600 Cubo Delgado, Esther 131 600 0000-0003-0018-1182 2024-03-15T09:16:29Z 2024-03-15T09:16:29Z 2023-04 0308-0226 http://hdl.handle.net/10259/8833 10.1177/03080226231156523 1477-6006 Introduction: Huntington’s disease (HD) is an autosomal dominant neurodegenerative disorder characterized by motor dysfunction, cognitive impairment, and psychiatric disorders. These symptoms cause functional limitations in occupational performance. This study aimed to describe the difficulties in self-care, productivity, and leisure activities and to analyze the patients’ own perception and satisfaction and the association with sex, age, disability, HD severity, and quality of life. Method: We conducted an observational, retrospective study in 38 patients with HD without cognitive impairment at the Burgos University Hospital. We assessed occupational performance, quality of life, and HD severity with the Canadian Occupational Performance Measure, Short-Form Health Survey 12, Unified Huntington’s Disease Rating Scale, Total Functional Capacity, and the Problems Behavior Assessment. Results: One hundred sixty-five occupations (median 4, range 2–7) were categorized as self-care (50.90%), leisure (30.30%), and productivity (18.79%). Patients reported a higher degree of satisfaction with the activities prioritized than with the degree of performance. Elderly HD patients reported more satisfaction in leisure and women in self-care. Self-ratings of satisfaction in productivity were associated with higher levels of mental wellbeing. Conclusions: HD patients have problems with their daily life occupations, particularly with self-care. This underlines the need for assessment tools that capture the complexity of occupations. application/pdf eng SAGE Publications British Journal of Occupational Therapy. 2023, V. 86, n. 6, p. 432-440 https://doi.org/10.1177/03080226231156523 Activities of Daily Living Rehabilitation Patient-centered care Occupational therapy Self-concept Sistema nervioso-Enfermedades Medicina Neurología Nervous system-Diseases Medicine Neurology Occupational performance in Huntington’s disease: A cross-sectional study info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion info:eu-repo/semantics/openAccess British Journal of Occupational Therapy 86 6 432 440 THUMBNAIL Simon-bjot_2023.pdf.jpg Simon-bjot_2023.pdf.jpg IM Thumbnail image/jpeg 4750 https://riubu.ubu.es/bitstream/10259/8833/3/Simon-bjot_2023.pdf.jpg 6fa49570ce4243046318f2b037df31eb MD5 3 LICENSE license.txt license.txt text/plain; charset=utf-8 999 https://riubu.ubu.es/bitstream/10259/8833/2/license.txt b295bcbce42e2caabeb0c623d3860c06 MD5 2 ORIGINAL Simon-bjot_2023.pdf Simon-bjot_2023.pdf application/pdf 266690 https://riubu.ubu.es/bitstream/10259/8833/1/Simon-bjot_2023.pdf dbb7e2f3f72177fa43a5be2201ff1c59 MD5 1 10259/8833 oai:riubu.ubu.es:10259/8833 2024-03-16 02:05:13.771 Repositorio Institucional de la Universidad de Burgos bubrep@ubu.es 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