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Repositorio Institucional de la Universidad de Burgos author Martínez Martín, Pablo author Cubo Delgado, Esther author Aguilar Barberà, Miquel author Bergaretxe, Alberto author Escalante Arroyo, Sonia author Rojo Sebastián, Ana author Campdelacreu, Jaume author Frades Payo, Belén author Arroyo Velasco, Susana author Menéndez Guisasola, Luis author Salvador Aguilar, Carlos author González González, S. author Bayés Rusiñol, Mª Ángels author Valldeoriola Serra, Francesc author Vela Desojo, Lydia author Benito-León, Julián author Vivancos Matellano, Francisco author Catalán Alonso, Mª José author García Muñozguren, Susana author Durán Herrera, Carmen author Duarte García-Luis, Jacinto author Martínez Castrillo, Juan Carlos author Mendoza, Amelia author Rodríguez Sanz, Mª Fernanda author López del Val, Luis Javier author Chacón Peña, José Rafael author Carballo Cordero, Manuel author Fernández, José Manuel author Campos Arillo, Víctor M. author Álvarez Saúco, María author Leiva Santana, Carlos author Castro García, Alfonso author Sesar Ignacio, Ángel author Ortega Moreno, Ángel author Luquin Piudo, Mª Rosario 2024-03-05T11:47:50Z 2024-03-05T11:47:50Z 2006-11 0210-0010 http://hdl.handle.net/10259/8753 10.33588/rn.4310.2006307 Introducción. En la enfermedad de Parkinson (EP) existe una alta prevalencia de trastornos del sueño. Objetivos. Comprobar los atributos métricos básicos de la escala SCOPA-sueño para pacientes con EP; objetivo secundario: analizar el impacto del trastorno del sueño en la calidad de vida relacionada con la salud (CVRS) del paciente y de su cuidador principal. Sujetos y métodos. 68 pacientes con EP y sus cuidadores principales. Se aplicaron: Hoehn y Yahr, SCOPA-motor, impresión clínica de gravedad (CISIPD), escala PDSS, Hospital Anxiety and Depression Scale, SCOPA-psicosocial y EuroQoL. El cuidador cumplimentó un cuestionario PDSS sobre el sueño del paciente y las medidas de la CVRS (SF-36, EuroQoL). Se analizaron la aceptabilidad, las asunciones escalares, la consistencia interna, la validez de constructo y la precisión de la SCOPA-sueño. Resultados. La SCOPA-sueño mostró aceptabilidad satisfactoria y asunciones escalares. La subescala sueño nocturno (SC-Sn) presentó leve efecto techo (22,1%), y la subescala somnolencia diurna (SC-Sd), defectuosa validez convergente del ítem 6; la consistencia interna de ambas resultó satisfactoria (alfa = 0,84 y 0,75, respectivamente). SC-Sn correlacionó significativamente con la PDSS (rS= –0,70) y con el cuestionario PDSS cumplimentado por el cuidador (rS = –0,53), y fueron menores los valores respectivos para la SC-Sd (rS= –0,41 y –0,50). Error estándar de la medida: SC-Sn, 1,45; SC-Sd, 1,76. La CVRS del paciente y la del cuidador mostraron una escasa correlación con las medidas de sueño. Conclusiones. La escala SCOPA-sueño es viable, consistente y útil para evaluar el trastorno del sueño en pacientes con EP. La relación entre la CVRS y la alteración del sueño fue débil. [REV NEUROL 2006; 43: 577-83] Introduction. There is a high prevalence of sleep disorders in Parkinson’s disease (PD). Aims. To assess some basic metric attributes of the SCOPA-Sleep scale, a measure for PD patients; secondary objective: to check the impact caused by the sleep disorder on the health-related quality of life (HRQoL) of patients and their caregivers. Subjects and methods. 68 PD patients and their main caregivers; measures: Hoehn and Yahr staging, SCOPA-Motor, Clinical Impression of Severity Index (CISI-PD), PDSS, Hospital Anxiety and Depression Scale, SCOPA-Psychosocial, and EuroQoL. Carers filled in a PDSS questionnaire about patient sleep and HRQoL measures (SF-36, EuroQoL). SCOPA-Sleep acceptability, scaling assumptions, internal consistency, construct validity and precision were determined. Results. SCOPA-Sleep acceptability and scaling assumptions resulted satisfactory, although the nocturnal sleep subescale (SC-Ns) showed a mild ceiling effect (22.1%) and a defective convergent validity was found for daytime sleepiness (SC-Ds) item 6. Internal consistency also was satisfactory for both scales (alpha = 0.84 and 0.75, respectively). The correlation between SC-Ns and PDSS was high (rS = –0.70), as it was between SC-Ns and PDSS questionnaire by caregiver (rS = –0.53). The corresponding coefficients with the SC-Ds gained lower values (rS = –0.41 y –0.50). Standard error of measurement was 1.45 for the SC-Ns and 1.76 for the SC-Ds. Both, patient and caregiver HRQoL showed a loose association with the sleep measures. Conclusion. SCOPA-Sleep is a feasible, consistent, and useful scale for assessment of sleep disorder in PD patients. A weak association between sleep disorder and HRQoL was found. [REV NEUROL 2006; 43: 577-83] Introdução. A doença de Parkinson (DP) associa-se a uma elevada prevalência de perturbações do sono. Objectivos. Comprovar os atributos métricos básicos da escala SCOPA-sono para doentes com DP; objectivo secundário: analisar o impacto das perturbações do sono na qualidade de vida relacionada com a saúde (QVRS) do doente e do seu principal cuidador. Sujeitos e métodos. Foram estudados 68 doentes com DP e respectivos cuidadores. Aplicaramse as escalas: Hoehn e Yahr, SCOPA-motor, Clinical Impression of Severity Index for Parkinson’s Disease (CISI-PD), escala PDSS, Hospital Anxiety and Depression Scale, SCOPA-psicosocial e EuroQoL. O cuidador preencheu um questionário PDSS sobre o sono do doente e as medidas da QVRS (SF-36, EuroQoL). Foram analisadas a aceitabilidade, as assunções escalares a consistência interna, a validade de construção e a precisão da SCOPA-sono. Resultados. A SCOPA-sono revelou aceitabilidade satisfatória e assunções das escalas. A subescala sono nocturno (SC-Sn) apresentou um discreto efeito tecto (22,1%) e a subescala sonolência diurna (SC-Sd) uma validade convergente imperfeita do item 6; a consistência interna de ambas resultou satisfatória (alfa = 0,84 e 0,75, respectivamente). SC-Sn correlacionou-se significativamente com a PDSS (rS = –0,70) e com o questionário PDSS preenchido pelo cuidador (rS = –0,53), e foram menores os valores respectivos para a SC-Sd (rS = –0,41 e –0,50). O erro standard das medidas foi: SC-Sn, 1,45; SC-Sd, 1,76. A QVRS do doente e do cuidador revelou uma ténue correlação com as medidas do sono. Conclusões. A escala SCOPA-sono é viável, consistente e útil para avaliar a perturbação do sono em doentes com DP. Detectou-se uma ténue relação entre a QVRS e a alteração do sono. [REV NEUROL 2006; 43: 577-83] spa Attribution-NonCommercial-NoDerivatives 4.0 Internacional Calidad de vida relacionada con la salud CISI-PD Enfermedad de Parkinson Evaluación SCOPA-sueño Trastorno del sueño Parkinson’s Disease Rating Scale Health-related quality of life Parkinson’s disease Assessment SCOPA-Sleep Sleep disorder Qualidade de vida relacionada com a saúde Doença de Parkinson Avaliação Escala para avaliação da doença de Parkinson SCOPA-sono Perturbação do sono Estudio piloto sobre una medida específica para los trastornos del sueño de la enfermedad de Parkinson: SCOPA-Sueño info:eu-repo/semantics/article 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 URL https://riubu.ubu.es/bitstream/10259/8753/1/Martinez-rn_2006.pdf File MD5 6967c0e9ea861f9849fb8be35c71cd9e 56254 application/pdf Martinez-rn_2006.pdf URL https://riubu.ubu.es/bitstream/10259/8753/4/Martinez-rn-eng_2006.pdf File MD5 65a8fdb077422312a49303a291177a16 58127 application/pdf Martinez-rn-eng_2006.pdf