RT info:eu-repo/semantics/article
T1 Occupational performance in Huntington’s disease: A cross-sectional study
A1 Simón Vicente, Lucía
A1 Cuesta García, César
A1 Rivadeneyra Posadas, Jéssica Jannett
A1 Mariscal, Natividad
A1 Aguado, Laura
A1 Miguel-Pérez, Irene
A1 Saiz Rodríguez, Miriam
A1 García Bustillo, Álvaro
A1 Muñoz-Siscart, Ignacio
A1 Piñeiro, Dolores
A1 Cubo Delgado, Esther
K1 Activities of Daily Living
K1 Rehabilitation
K1 Patient-centered care
K1 Occupational therapy
K1 Self-concept
K1 Sistema nervioso-Enfermedades
K1 Nervous system-Diseases
K1 Medicina
K1 Medicine
K1 Neurología
K1 Neurology
AB Introduction:Huntington’s disease (HD) is an autosomal dominant neurodegenerative disorder characterized by motor dysfunction, cognitive impairment, and psychiatric disorders. These symptoms cause functional limitations in occupational performance. This study aimed to describe the difficulties in self-care, productivity, and leisure activities and to analyze the patients’ own perception and satisfaction and the association with sex, age, disability, HD severity, and quality of life.Method:We conducted an observational, retrospective study in 38 patients with HD without cognitive impairment at the Burgos University Hospital. We assessed occupational performance, quality of life, and HD severity with the Canadian Occupational Performance Measure, Short-Form Health Survey 12, Unified Huntington’s Disease Rating Scale, Total Functional Capacity, and the Problems Behavior Assessment.Results:One hundred sixty-five occupations (median 4, range 2–7) were categorized as self-care (50.90%), leisure (30.30%), and productivity (18.79%). Patients reported a higher degree of satisfaction with the activities prioritized than with the degree of performance. Elderly HD patients reported more satisfaction in leisure and women in self-care. Self-ratings of satisfaction in productivity were associated with higher levels of mental wellbeing.Conclusions:HD patients have problems with their daily life occupations, particularly with self-care. This underlines the need for assessment tools that capture the complexity of occupations.
PB SAGE Publications
SN 0308-0226
YR 2023
FD 2023-04
LK http://hdl.handle.net/10259/8833
UL http://hdl.handle.net/10259/8833
LA eng
DS Repositorio Institucional de la Universidad de Burgos
RD 09-may-2024